Friday, December 07, 2007

On summarising notes



At the Ranting House surgery we have embarked on a plan to get all the patients summarised into a more usable form. Now we have got a summariser in to most of the work.

But Dr Rant and his partners have agreed to shoulder one part of the project. They are summarising all the fat file (Often 2 or 3 full files) patients themselves. That’s because these patients take up so much time and would delay the summariser and stop him getting up any flow at all.

Now these fat file patients are a challenge. They are an example of the 80/20 rule in action, and they are the top consumers of medical services in our practice.

When you spend an hour summarising their notes you start to realise certain patterns about these fat file patients.

Firstly some fat file patients have long term illnesses that guarantee the need for a lot of fully justified medical correspondence and treatment. These patients are medically complex and have significant chronic diseases. So for example we have patients with rheumatoid arthritis with complications, chronic renal failure/dialysis/transplantation scenarios, long term effects of congenital heart disease, cystic fibrosis. These patients cannot avoid having large medical records- they have needed a lot of medicine. You learn a lot of medicine just reading their notes.

And then there are others. I can usually summarise these down from 300,000 words of medical verbiage into 3 word summaries such as “useless fat lump”, “manipulative moaning minnie”, “feckless, futile and fecund”, “painful persistent problem”, “histrionic helpless harpy” and similar. “Candidate for RADA” used to be a medical code but we’re not allowed to use such phrases any more. It might upset the Guardian reading teachers (GRT) and funny looking kids (FLK) too much.


When you stare into the abyss of chronic polysymptomatic bio-socio-psycho-sexual-relationship-dysthmia-acopia dysfunction for too long it begins to stare back into you. And what I realised summarising these very thick sets of notes is that:-

1. The patient is the one with the disease and I’m glad it’s not me
2. I’m glad these patients are not related to me
3. I couldn’t stand to be married to any of them
4. The symptoms presented were mostly not the problem
5. The patient rarely wanted the true problem to come out
6. Or to do anything about it.
7. How little actual medicine (pathology) was ever diagnosed
8. How little purpose these people’s lives had ever had
9. How much psychological and social stress is turned into medical symptomatology (both by some patients, and by many doctors)
10. How as much help avoidance as help seeking behaviour was often happening simultaneously

These folk would play at getting their symptoms treated. They’d come demanding referrals to local hospitals, far away hospitals, famous centres of excellence. And then they’d want counselling, or cognitive behavioural therapy. Or they’d want yet another opinion. Or shift to a different speciality.

And having demanded the 94th opinion they might or might not bother attending the appointment. All the characteristics of self-sabotage and effective ineffectiveness were in action. Oh and jobs were lost, reports written to employers, benefits forms completed and so forth.

In surgery I mostly manage to stay polite to these patients, although I try and avoid them as far as possible.

But when you review their cases from one step removed you realise how much time, energy and resource (your tax pounds) these patients have sucked out of the NHS and not for medical need.

As a rule Dr Rant has a low tolerance for those people who he feels have a severe case of plumbum oscillans or who are otherwise breaking the rules of the sick role. And he tries to obey the Hippocratic dictum to “First, Do no harm” and these patients give him endless opportunities to break this rule. It’s hard to avoid doing harm when a patient wants every test under sun done before she’ll believe it’s not cancer. And then wants them repeating in six months time, just to make sure…again.

And he gets frustrated when he realises his colleagues have done them all again!

Fortunately there are not too many of these patients per GP (and we rarely take them off our list as we know our neighbour down the road could simply offload one of his similar ones on to us). However collectively these patients are a huge drain on the NHS for very little demonstrable medical need.

As Moliere put it, Ils n’ont pas le malade, Ils n’y a que malade
(They don’t have an illness, they’re just ill)

The fat file patient is a symbol of something gone wrong, and I don’t know anyone who has an answer to the problem.

Suggestions welcome.

And in the meantime at least summarising the notes gets the bones of the story clearer, and should make it easier to spot patterns as they are played out for the 94th time.

13 comments:

Anonymous said...

I saw a patient in Majors who was in with central chest pain who told us he had had 2 heart attacks before.

Only after all the tests were done and he had been partly treated did a letter get spotted that said he had presented >60 times for central chest pain with NAD each time.

Struck me as a man who needs to be told he cannot come in every couple of weeks and get a battery of tests just to ensure he is NOT having a heart attack...

Just to highlight these people are also seen in hospital as well as GP land.

Anonymous said...

Oh Doc- get a grip! You obviously have NOT learned a thing from your recent woeful attempt to play the 'malingerer-hypochondriac-psychosomatic' card agains the poor, severely ill, hapless patients being diagnosed with "CFS".

A 'Fat file' can signify any number of problems: doctor prejudice and misunderstanding and even a 'pass the buckiness' among them. It can signify lack of knowledge about illness from doctor after doctor, and it can signify severe impairment in a patient. Bleating on about 'breaking the sick role' is the sign of an unreflective functionalism, that indicates no matter how much precis and word pruning you undertake- your patients are still going to have 'fat files' and no help for what might actually ail them as they continue to suffer througout the years. Sigh.

Elaine said...

Oh well, I am sorry to relate that I must be a fat file patient.

I have had an infarct (R parietal lobe) with consequent epilepsy, also meniere's disease, cardiac arrythmia;peripheral, peripheral neuropathy ro bane but a few. As a consequence I feel I really require the medication I gave been prescribed, even though it has now reached 24 items

Dr Rant said...
This post has been removed by the author.
Dr Rant said...

For fuck's sake!

Elaine - I presume you didn't fake your CT head scan. That would put you in the other category of 'fat file' patient I described.

However, my practice has over 10,000 registered patients, and a small percentage of them consume a significant amount of the practice's time, resources and patience.

Rueful said...

Very intriguing, though saddening, that the same people who present repeatedly with mystery symptoms are the same ones who most vehemently deny that any of it could be "the mind playing tricks".

As a doctor's significant other, a committed hypochondriac, and the inheritor of a family tradition (3rd generation - must be the potty training) of IBS, I have been saved from driving the GP bonkers by gentle ridicule from the Mrs, and (hopefully) a modicum of insight into the fact that my occasional mystery symptoms and twitchy symptom perception are produced by my brain doing what it (mysteriously) does.

oldgit said...

Wonder how long McDonald’s/Virgin/Tesco managers will keep people like this on their lists.

Elaine said...

errrm - wish the ct scan result had been a fake, but sadly not. Also it is 14 meds (not 24!)

It's being so cheerful as keeps you going!

Dr Blue said...

Elaine
Your story, and hence notes, may well be long, but it sounds that they would be full of medical events. Worth summarising for utility and also to learn some medicine reading them.

You'd be in the first group of fat files (a lot of medicine has happened here)

Resilience is one the qualities I most admire in patients. You only find out who has it when a person is brought to the time of trial.

Anonymous said...

Suggestions welcome: I like to summarise the fat notes when these pts join the practice. It is ueseful to record the number of normal investigations.
I generally send a copy of that summary to the patient.

I like the Neitzche reference, but should be gaze, not stare.

David
(bakerda)

Anonymous said...

er charge for appointments

let patients choose any GP they like

would be interesting to know how fat files in UK compare to places where everyone is paying to see a GP

refunds for the most serious conditions and inability to pay, not many folk in this category by my defintions

Dr Phibes said...

I generally find if you tell things as they are to your second category of fat file patients, they soon get fed up and move on to somebody else who is more of a pushover.

Anonymous said...

Two words will solve your problem...

and the second one isn't "... Off"

Hattie Jacques.

Get yerselves a goddamn down-to-earth don't-fuck-with-my-doctors matron.

Much as I hate to be subservient to the medics (being a handmaiden for 14+ years now) I still perform my own differential diagnosis on the patient known to frequently be described as WOFTAM and re-direct them to the basic care. Of course, working in psychiatry, it's less likely I'll miss some rare disease any more than the medico. Usually it's "I haven't shit for a week" .. 'well close yer mouth and give ya arse a chance' or "It hurts when I do this... " .. 'keep doing it til it goes away'

Alternatively, paradoxical intent: Invite them in weekly for proctology exams. For best effect, refer back to Hattie Jacques.